Breaking the Silence: Why We Need to Talk About Epilepsy

As a neurologist with extensive experience in both the UK and India, I’ve witnessed firsthand how silence and stigma can be as challenging as the medical aspects of epilepsy. Through my work with SAMMAN and my clinical practice, I’ve seen how open conversations can transform lives and communities.

The Weight of Silence

Epilepsy affects approximately 50 million people worldwide, yet it remains one of the most misunderstood neurological conditions. The silence surrounding epilepsy often stems from:

• Historical misconceptions and superstitions
• Fear of social stigma and discrimination
• Lack of public awareness and education
• Cultural taboos in various communities

Myths That Need Shattering

In my practice across different cultures, I’ve encountered numerous myths about epilepsy. Let’s address some of the most common ones:

1. Myth: Epilepsy is contagious Fact: Epilepsy cannot be transmitted from person to person

2. Myth: People with epilepsy are intellectually disabled Fact: Epilepsy affects people of all intelligence levels

3. Myth: Epilepsy is a mental illness Fact: Epilepsy is a neurological condition, not a mental health disorder

The Power of Open Dialogue

Through my work at leading healthcare institutions in Mumbai and my involvement with rural health camps, I’ve seen how open conversations can:

• Reduce fear and anxiety
• Improve treatment adherence
• Build stronger support networks
• Create more inclusive communities

Creating Safe Spaces for Discussion

In my practice, I’ve found that creating safe spaces for discussion is crucial. This involves:

• Encouraging questions and curiosity
• Providing accurate, accessible information
• Addressing cultural and social concerns
• Building trust through consistent communication

The Role of Education

Education is a powerful tool in breaking the silence. Through my teaching experience with medical students and my work with patient education programs, I’ve seen how knowledge can:

• Empower individuals with epilepsy
• Help families provide better support
• Enable communities to be more understanding
• Guide healthcare providers in offering better care

Moving Forward Together

Breaking the silence about epilepsy requires a collective effort. Here’s how we can all contribute:

• Share accurate information about epilepsy
• Challenge misconceptions when we encounter them
• Support organizations working for epilepsy awareness
• Create inclusive environments in schools and workplaces
• Advocate for better healthcare access

A Message of Hope

Through my years of practice and my work with SAMMAN, I’ve seen how breaking the silence can lead to:

• Earlier diagnosis and treatment
• Better quality of life for people with epilepsy
• Stronger community support
• Reduced stigma and discrimination
• More research and better treatments

Remember, every conversation about epilepsy helps break down barriers. Whether you’re living with epilepsy, supporting someone who is, or simply want to learn more, your voice matters in creating a more understanding and supportive world.